Oostrom, I.I.H. van

cancer family testing distress mutation study brca 1/2 1/2 result individual breast hnpcc cancer distress breast cancer illness participant relationship women impact susceptibility support carrier patient representation susceptibility testing family system characteristics test result characteristic perception children scale result disclosure disclosure communication health hnpcc mutation families model illness representations risk perception relative counseling parent brca 1/2 mutation family relationships level system caregiver partner genet center consequence change university month factor status experience cancer status chapter table difference erasmus mc variable non-carrier adjustment rotterdam mutation carriers cancer susceptibility testing syndrome genetic effect event scale measure brca 1 cohesion colorectal prophylactic cancer syndrome mother style