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level burden parent activity adult caregiver patient caregiver burden study transition characteristic health participant anxiety palsy rehabil scale problem caregiving rehabilitation centre motor netherland caregiver strain index dystrophy motility period measurement depression association gmfcs level i support duration objective care characteristics table experience person objective group tracheotomy factor spastic cp strain meeting adolescent age-mate range number duchenne sheet population spastic measure expert meeting participants difference report erasmus mc rotterdam wheelchair propulsion quality adulthood wheelchair parent characteristics depression scale expert result analysis status index van exel nj carerqol expert meeting report disabil euroqol hospital anxiety fact sheet instrument unweighted relationship intensity
3 Most Recent Publications
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Transition in Duchenne Muscular Dystrophy: An expert meeting report and description of transition needs in an emergent patient population. (Parent Project Muscular Dystrophy Transition Expert Meeting 17-18 June 2011, Amsterdam, The Netherlands)
(Article)
Schrans, D.G.M. Abbott, D. Peay, H.L. Pangalila, R.F. Vroom, E. Goemans, N. Vles, J.S.H. Aldenkamp, A.P. Hendriksen, J.G.M. |
2012-09-17
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Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy
(Article)
Pangalila, R.F. Bos, G.A.M. van den Stam, H.J. Exel, N.J.A. van Brouwer, W.B.F. Roebroeck, M.E. |
2012-04-30
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Inactive lifestyle in adults with bilateral spastic cerebral palsy
(Article)
Nieuwenhuijsen, C. Slot, W.M.A. van der Pangalila, R.F. Nieuwstraten, W. Terburg, M. Heijden-Maessen, H. van de Buijs, H.J.R. Ras, B. Voogt, T. Janssens, P.J. Pesch, J. Dallmeijer, A.J. Beelen, A. Wensink-Boonstra, A. Arendzen, J.H. Roebroeck, M.E. Stam, H.J. Berg-Emons, H.J.G. van den Janssen, W.G.M. Bergen, M.P. Spijkerman, D. |
2009-04-01
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