Sijmons, R.H.

cancer family mutation distress study testing individual carrier disease partner genetic result support university database patient cancer distress brca 1/2 level netherland 1/2 scale participant health syndrome hnpcc table signi ficantly member signi department variant breast relationship genet breast cancer surveillance center system children illness impact research laboratory family members representation characteristic result disclosure family system characteristics population test result hnpcc mutation families tumor variable variation communication status perception women model relative susceptibility group analysis project susceptibility testing disclosure ficantly number germline cancer status score advice gender counseling erasmus mc illness representations parent von hippel-lindau disease worry