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patient family members family health member choice guideline health care participation organization information policy professional study patient organizations development worden patient participation wordt burger journal toezicht nursing process participatie support article practice provider group hospital communication nurse focus decision research sector ënten bovenkamp kunnen hebben netherland experience guideline development informatie contact system author health-care interview cancer andere quality health nurses inc consumer familieleden health care professionals relationship healthcare problem carer sweden denmark england patient preferences country relative service inspectie respondent decision-making belang waarden health-care professionals oncology burgerparticipatie survey verschillende nursing homes health care workers