Haeringen, A. van

mutation cancer family patient melanoma study deletion testing research genet pancreatic cancer genetic holoprosencephaly counseling department netherland member university patient-reported family members center journal health outcome pancreatic carrier factor model uptake quality fi rst chromosome counselee analysis phenotype level phenotypic phenotypic effect distress result j med genet region impact signi semilobar pre-test risk signi ficantly relationship speci fetus picture disease figure leiden university geneqol consortium leiden holoprosencephaly adc paulussen 16-leiden dna test expectancies test uptake characteristic scienti mayo clinic p 16-leiden alobar patient-reported qol semilobar hpe paper symptom table parent amsterdam patient-reported qol outcomes variable effect pathway cleft feature motivation underpinning