Smyth, A.R.

trial patient ecfs-ctn network research fi brosis centre european brosi study organization committee protocol disease parent patient parent organizations cff-tdn speci quality review function design protocol review committee fibrosis / journal outcome company cf patients boeck group trials network meeting suppl europe children development expertise number conduct report treatment trial networks outcome parameters fibro lung function parameter information partner coordinator process eurocarecf country society cf lung disease structure registry study design protocol review procedure volume communication cf centres paediatric journal participation subject 67– executive example priority safety feasibility consensus standardization therapy scienti staff request pediatr fibrosis society