Vroom, E.( E. Vroom)
transition adult meeting sheet expert meeting participants dystrophy adulthood expert expert meeting report fact sheet participant patient population process documentary adolescent schran schrans dgm population netherland adult care fact sheets duchenne report article patient parent support paediatric press centre health theme documentary “ dmd project adult services transition process parent project service kempenhaeghe epilepsy centre future – issue paradigm change disease d.g.m description experience approach individual disord disorder neuromuscul order ﬀerent ﬁ ndings watershed moments author expert meeting presentation marquardt j family place paediatric disease importance access dmd – adult life generation dmd documentary university aspect novel patient population paradigm professional –18th june 2011 moment health care skills press 4 d.g.m interview information transition processes result
1 Most Recent Publications
Transition in Duchenne Muscular Dystrophy: An expert meeting report and description of transition needs in an emergent patient population. (Parent Project Muscular Dystrophy Transition Expert Meeting 17-18 June 2011, Amsterdam, The Netherlands)
Schrans, D.G.M. Abbott, D. Peay, H.L. Pangalila, R.F. Vroom, E. Goemans, N. Vles, J.S.H. Aldenkamp, A.P. Hendriksen, J.G.M.