A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
Purpose: To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU). Method: Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents' experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed. Results: Parents were interviewed within 1 month after their child's discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes. Conclusions: The findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care.
|Keywords||Critical care, Experiences, Family-centered care, Needs, Pediatric, Qualitative research, Stress|
|Persistent URL||dx.doi.org/10.1007/s00134-010-2074-3, hdl.handle.net/1765/21368|
Latour, J.M., van Goudoever, J.B., Schuurman, B.E., Albers, M.J.I.J., van Dam, N.A.M., Dullaart, E., … Hazelzet, J.A.. (2010). A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units. Intensive Care Medicine, 37(2), 319–325. doi:10.1007/s00134-010-2074-3