Background/Aims: The current study examined the change of caregiver burden and the development of the quality of the partner relation in frontotemporal dementia (FTD). Methods: During a 2-year period, deterioration, behavioural problems, caregiver burden, general psychopathology, quality of life, social support, coping strategies and relationship quality were inspected in 63 FTD caregiver-care recipient dyads. Results: After 2 years patients reached maximum dementia severity with stable Neuropsychiatric Inventory levels. Contrary to expectations, caregiver burden decreased and psychological well-being remained stable. Coping style and social support changed unfavourably. Relationship closeness and getting along were preserved, whereas communication and sharing viewpoint on life were dramatically reduced. Conclusions: FTD caregivers need support in coping with the increasingly hopeless situation of their patients. Future research methods into caregiver burden should address response shift as a means for psychological adjustment. Copyright

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Keywords Caregiver burden, follow-up, Frontotemporal dementia, Relationship quality
Persistent URL dx.doi.org/10.1159/000164276, hdl.handle.net/1765/30372
Citation
Riedijk, S.R., Duivenvoorden, H.J., Rosso, S.M., van Swieten, J.C., Niermeijer, M.F., & Tibben, A.. (2008). Frontotemporal dementia: Change of familial caregiver burden and partner relation in a Dutch cohort of 63 patients. Dementia and Geriatric Cognitive Disorders, 26(5), 398–406. doi:10.1159/000164276