Wat als de zaaddonor een erfelijke ziekte heeft? Informed consent nodig voor uitwisse ling medische informatie

There are no regulations in the Netherlands regarding the exchange of important genetic information that has become available after the birth of a child conceived with donor gametes. This may lead to difficult situations such as when the gamete donor is found to suffer from a genetic cancerpredisposition disorder. Genetic information about the donor that becomes available later may be of great importance to donor offspring. Genetic information uncovered in the donor child may likewise be of importance to legal offspring of the gamete donor. We propose an informedconsent procedure for both donors and recipients to take better care of this issue.