"What if this is my chance to save my life?"
A semistructured interview study on the motives and experiences of end-stage renal disease patients who engaged in public solicitation of a living kidney donor
The increase in patients using public solicitation (PS) to find a living kidney donor has generated a debate about the ethical complexities of PS. To investigate why patients engaged in PS and what they experienced during PS, we conducted semistructured interviews with 20 Dutch patients with end-stage renal disease who had publicly solicited a living donor. Transcripts were thematically analyzed. We identified ten themes on patients' considerations preceding PS: cautiousness in discussing living donation within social network; reluctance to accept a kidney from loved ones; rejection/withdrawal of related donor candidates; moral objections to paid donation; the ease of social media; encouraged by others; ends justifying the means; despair and urge to take action; public disclosure of vulnerability; fear of being (perceived to be) selfish. We identified nine themes on patients' experiences: positive emotions and support generated by action; genuine and ulterior motives for donation; patients acting as educators and screeners; time- and energy-consuming process; emotionally taxing process; positive interactions with donor candidates; feeling of dependency and obligation; limited cooperation from health professionals; demands a proactive attitude and media strategy. These results can inform and complement (existing) policies on PS and provide content for education of patients who are considering PS.
|Keywords||Kidney transplantation, Medical ethics, Organ donation, Public solicitation, Unrelated donors|
|Sponsor||This research was funded by a research grant provided by the Dutch Kidney Foundation (SWO14.04)|
|Persistent URL||dx.doi.org/10.1111/tri.13095, hdl.handle.net/1765/103516|
Pronk, M.C, Slaats, D, Zuidema, W.C, Hilhorst, M.T, Dor, F.J.M.F, Betjes, M.G.H, … Massey, E.K. (2017). "What if this is my chance to save my life?". Transplant International. doi:10.1111/tri.13095