The proliferation of electronic health databases has resulted in the existence of a wide collection of diversified clinical digital data. These data are fragmented over dispersed databases in different clinical silos around the world. The exploration of these electronic health records (EHRs) is essential for clinical and pharmaceutical research and, therefore, solutions for secure sharing of information across different databases are needed. Although several partial solutions have been proposed over the years, data sharing and integration has been hindered by many ethical, legal and social issues. In this paper, we present a methodology to perform semiautomatic queries over longitudinal clinical data repositories, where every data custodian maintains full control of data.

Additional Metadata
Keywords Clinical Research, Cohorts, Electronic Health Records, Observational Studies, Secondary Use
Persistent URL hdl.handle.net/1765/109879
Conference 11th International Conference on Health Informatics, HEALTHINF 2018 - Part of 11th International Joint Conference on Biomedical Engineering Systems and Technologies, BIOSTEC 2018
Citation
Fajarda, O. (Olga), Silva, L.B. (Luís Bastião), Rijnbeek, P.R, Van Speybroeck, M. (Michel), & Oliveira, J.L. (2018). A methodology to perform semi-automatic distributed EHR database queries. In HEALTHINF 2018 - 11th International Conference on Health Informatics, Proceedings; Part of 11th International Joint Conference on Biomedical Engineering Systems and Technologies, BIOSTEC 2018 (pp. 127–134). Retrieved from http://hdl.handle.net/1765/109879