Gemstracker Expertise team Rotterdam arm and hand: Web-based monitoring of physical, social and emotional functioning in patients with upper limb amputations

Background and aim: Patient-reported outcome measures are increasingly used to evaluate effectiveness of treatment. However, the use of ‘paper and pencil’ questionnaires is time-consuming for both patients and healthcare specialists. Therefore, the aim of this project was to develop a custom-built web-based monitoring system. Technique: We incorporated reliable and valid questionnaires on all domains of human functioning as described in the World Health Organization’s Classification of Functioning, Disability and Health (ICF and ICF-CY). The method of remote follow-up enables long-term evaluation of PROMs. We specified monitoring protocols for both children and adults, split for different age groups with emphasis on health-related quality of life. Discussion: Time-efficient evaluation of PROMs may lead to higher compliance and an increase of client-centred practice. Moreover, evaluating PROMs facilitates patient empowerment and enables patients to make informed decisions about their treatment and healthcare needs. Clinical relevance: We developed a web-based system for evaluation of PROMs. The system has enabled better informed decision-making for our clients.

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