The research described in this thesis is focused on translating and validating patient-reported outcome measures for Dutch patients with interstitial lung diseases and pulmonary hypertension (part 1), develop patient-recorded outcome measures (part 2), and interventions aimed at improving quality of life for patients (part 3).

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Keywords interstitial lung diseases, pulmonary hypertension, idiopathic pulmonary fibrosis, sarcoidosis, pulmonary arterial hypertension, chronic thromboembolic pulmonary hypertension, patient-reported outcome measure, PROM, quality of life, QOL, K-BILD, King's brief interstitial lung disease questionnaire, KSQ, King's sarcoidosis questionnaire, CAMPHOR, Cambridge Pulmonary Hypertension Outcome Review, home monitoring, home spirometry, pulmonary rehabilitation, diffusing capacity, DLCO, TLCO, reference values, GLI
Promotor J.G.J.V. Aerts (Joachim) , M.S. Wijsenbeek-Lourens (Marlies) , K.A.T. Boomars (Karin)
Publisher Erasmus University Rotterdam
Sponsor Unrestricted research grants for research described in this thesis are gratefully acknowledged and have been received from: Erasmus MC Thorax Foundation, ILD Care Foundation, Dutch sarcoidosis patient foundation (SBN), Pender foundation of the Dutch pulmonary fibrosis patient association, Actelion Pharmaceuticals Ltd, Boehringer Ingelheim, GSK- the Netherlands and Intermune/ Hoffman la Roche
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Note For copyright reasons there is a partial embargo for this dissertation
Wapenaar - de Korver, M. (2019, October 29). Patient-Reported and Patient-Recorded Outcomes in Interstitial Lung Diseases and Pulmonary Hypertension. Erasmus University Rotterdam. Retrieved from