BACKGROUND: Numerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates shared decision making and stimulates self-management is most likely more valuable for clinical practice than a questionnaire alone. This study aims to transform the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool for COPD, asthma, and diabetes mellitus type 2 (DM2). The tool consists of a scale, a visualisation of the outcomes, and treatment advice. METHODS: Requirements for the tool were formulated. Questionnaires were developed based on a literature study of existing questionnaires, clinical guidelines, interviews with patients and healthcare providers, and input from an expert group. Cut-off points and treatment advice were determined to display the results and to provide practical recommendations. RESULTS: The ABCC-scale consists of a generic questionnaire and disease-specific questionnaires, which can be combined into a single individualized questionnaire for each patient. Results are displayed in one balloon chart, and each domain includes practical recommendations. CONCLUSIONS: The ABCC-tool is expected to facilitate conversations between a patient and a healthcare provider, and to help formulate treatment plans and care plans with personalised goals. By facilitating an integrated approach, this instrument can be applied in a variety of circumstances and disease combinations.

Additional Metadata
Keywords ABCC-tool, Asthma, Burden of disease, Chronic disease, COPD, Diabetes mellitus type 2, Patient-centered care, Questionnaire, Self-management, Shared decision making
Persistent URL dx.doi.org/10.1186/s12875-019-1075-8, hdl.handle.net/1765/123842
Journal BMC family practice
Citation
Boudewijns, E.A. (Esther A.), Claessens, D. (Danny), Schayck, O.C.P, Keijsers, L.C.E.M. (Lotte C E M), Salome´, P.L, in 't Veen, J.C.C.M, … Gidding-Slok, A.H.M. (Annerika H M). (2020). ABC-tool reinvented: development of a disease-specific 'Assessment of Burden of Chronic Conditions (ABCC)-tool' for multiple chronic conditions. BMC family practice, 21(1). doi:10.1186/s12875-019-1075-8