Objective: To assess participation and health-related quality of life in adults with bilateral spastic cerebral palsy, and explore associations with self-efficacy. Design: Cross-sectional study. Subjects: A sample of 56 adults with bilateral spastic cerebral palsy (mean age 36.4 (standard deviation 5.8) years; 62% male). Methods: Daily activities and social participation (Life Habits 3.0), health-related quality of life (SF-36 Health Survey), demographic and clinical characteristics, and self-efficacy (General Self-Efficacy Scale (GSES-12)) were assessed. Associations were studied using multivariate logistic regression analyses. Results: At least 60% of the sample had difficulties with mobility, recreation and housing, and 44% had difficulty with personal care and employment. They perceived low health-related quality of life for physical functions, but not for mental functions. Corrected for demographic and clinical characteristics, general self-efficacy explained 49% of the variance in outcome on social participation, and the subscale Effort (GSES-12) 32% of the variance for the physical health-related quality of life and 16% of the mental healthrelated quality of life. Conclusion: A significant number of adults with bilateral spastic cerebral palsy encountered difficulties in social participation and had a low perceived health-related quality of life for physical functions. Higher general self-efficacy or a greater willingness to expend effort in achieving behaviour was related to better participation and a higher physical and mental health-related quality of life.

Activities of Daily Living, Adult, Adults, Cerebral Palsy, Cerebral palsy, Cross-Sectional, Female, Humans, Male, Participation, Quality of Life, Quality of life, Rehabilitation, Self Efficacy, Self-efficacy, Socioeconomic Factors, Studies, adult, article, cerebral palsy, cross-sectional study, daily life activity, female, human, male, pathophysiology, psychological aspect, quality of life, self concept, socioeconomics, study
dx.doi.org/10.2340/16501977-0555, hdl.handle.net/1765/20339
Journal of Rehabilitation Medicine
Erasmus MC: University Medical Center Rotterdam

van der Slot, W.M.A, Nieuwenhuijsen, C, van den Berg-Emons, H.J.G, Wensink-Boonstra, A, Stam, H.J, & Roebroeck, M.E. (2010). Participation and health-related quality of life in adults with spastic bilateral cerebral palsyand the role of self-efficacy. Journal of Rehabilitation Medicine, 42(6), 528–535. doi:10.2340/16501977-0555