In individuals with a disorder of sex development (DSD), prenatal development into male or female has deviated. Consequently, the child is born with anomalies of the genital tract and may have ambiguous sex characteristics. In Western countries, identification and treatment of DSD are performed early in life. In Indonesia, the affected individuals sought medical help later in life, as adolescents or adults, because DSD is not widely known and often misperceived as transgender. Prior to the study, the patients had lived with ambiguous bodies and gender, little or no treatment for DSD, and without understanding about their condition. As studies in Western countries had been conducting among early treated patients, little was known about the course of psychological development in these late identified patients. This presentation will report the findings on gender development, sexuality, emotional or behavioral problems, stigmatization, and health-related quality of life in 118 Indonesian children, adolescents, and adult patients with DSD in comparison to their matched control subjects.

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Keywords disorders of sex development, gender identity, sexuality, stigma, quality of life, emotional problems, late identified, Central Java, Indonesia
Promotor S.L.S. Drop (Stenvert) , S.M.H. Faradz (Sultana)
Publisher Erasmus University Rotterdam
Sponsor The research for this thesis was performed within collaboration between Diponegoro University-Semarang, Indonesia and ErasmusMC- Rotterdam, the Netherlands. The studies described in this thesis were conducted in the Dr. Kariadi Hospital/ Faculty of Medicine and Faculty of Psychology, Diponegoro University, Semarang Indonesia and received DIKTI grant (batch 3-2010) from the Directorate of Higher Education, Ministry of National Education and Culture, the Republic of Indonesia. The printing of this thesis was financially supported by the Diponegoro University and Erasmus University Rotterdam.
ISBN 978-90-6464-741-3
Persistent URL hdl.handle.net/1765/50331
Ediati, A. (2014, January 15). Disorders of sex development in Indonesia: The course of psychological development in late identified patients. Erasmus University Rotterdam. Retrieved from http://hdl.handle.net/1765/50331