Disease Management: The Need for a Focus on Broader Self-Management Abilities and Quality of Life

Abstract

The study objective was to investigate long-term effects of disease management programs (DMPs) on (1) health behaviors (smoking, physical exercise); (2) self-management abilities (self-efficacy, investment be-havior, initiative taking); and (3) physical and mental quality of life among chronically ill patients. The studyalso examined whether (changes in) health behaviors and self-management abilities predicted quality of life. Questionnaires were sent to all 5076 patients participating in 18 Dutch DMPs in 2010 (T0; 2676 [53%]respondents). Two years later (T1), questionnaires were sent to 4350 patients still participating in DMPs (1722[40%] respondents). Structured interviews were held with the 18 DMP project leaders. DMP implementationimproved patients’ health behavior and physical quality of life, but mental quality of life and self-managementabilities declined over time. Changes in patients’ investment behavior predicted physical quality of life at T1(P<.001); physical activity, investment behavior (bothP<.05), and self-efficacy (P<.01) at T0, and changes inself-efficacy and investment behavior (bothP<.001) predicted patients’ mental quality of life at T1. The long-term benefits of these DMPs include successful improvement of chronically ill patients’ health behaviors andphysical quality of life. However, these programs were not able to improve or maintain broader self-management abilities or mental quality of life, highlighting the need to focus on these abilities and overallquality of life. As coproducers of care, patients should be stimulated and enabled to manage their health and quality of life.