• Biobanks should return clinically significant and actionable research findings to donors who have given physical material to the biobank. • Because the clinical significance of a research finding is hard to determine for the individual donor, a procedure to decide on clinical significance should be incorporated into a structure for the actual feedback of research results. • Most published studies show that donors expect return of individual research results, but there is almost no experience with it. • Explorative questionnaire-based research among Dutch biobanks from the BioBanking Medical Research Infrastructure (BBMRI.NL) shows that a substantial group of biobanks can return individual research findings from data analysis. • On the basis of these experiences a return of results policy may be drafted that answers to the interests of donors and the possibilities of biobanks.

Nederlands Tijdschrift voor Geneeskunde
Erasmus MC: University Medical Center Rotterdam

Vermeulen, E., Boeckhout, M., Zielhuis, G., Bakker, R., Janssens, C., & Schmidt, M. (2014). Biobanks and the return of results to donors. Nederlands Tijdschrift voor Geneeskunde, 158(11). Retrieved from http://hdl.handle.net/1765/83992