Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS)
Quality of Life Research , Volume 24 - Issue 5 p. 1281- 1293
Purpose: Validity is a contextual aspect of a scale which may differ across sample populations and study protocols. The objective of our study was to validate the Care-Related Quality of Life Instrument (CarerQol) across two different study design features, sampling framework (general population vs. different care settings) and survey mode (interview vs. written questionnaire).Results: The CarerQol-7D dimensions were correlated to the CarerQol-VAS and SRB in the pooled data set and the subgroups. The strength of correlations between CarerQol-7D dimensions and SRB was weaker among caregivers who were interviewed versus those who completed a written questionnaire. The directionality of associations between the CarerQol-VAS, SRB and the CarerQol-7D dimensions in the multivariate model supported the construct validity of the CarerQol in the pooled population. Significant interaction terms were observed in several dimensions of the CarerQol-7D across sampling frame and survey mode, suggesting meaningful differences in reporting levels.Conclusions: Although good scientific practice emphasises the importance of re-evaluating instrument properties in individual research studies, our findings support the validity and applicability of the CarerQol instrument in a variety of settings. Due to minor differential reporting, pooling CarerQol data collected using mixed administration modes should be interpreted with caution; for TOPICS-MDS, meta-analytic techniques may be warranted.Methods: Data were extracted from The Older Persons and Informal Caregivers Minimum DataSet (TOPICS-MDS, www.topics-mds.eu), a pooled public-access data set with information on >3,000 informal caregivers throughout the Netherlands. Meta-correlations and linear mixed models between the CarerQol’s seven dimensions (CarerQol-7D) and caregiver’s level of happiness (CarerQol-VAS) and self-rated burden (SRB) were performed.
|Caregivers, CarerQol-7D, Geriatric health services, Quality of life, Visual analogue scale|
|Quality of Life Research|
|Organisation||Erasmus School of Health Policy & Management (ESHPM)|
Lutomski, J.E, van Exel, N.J.A, Kempen, G.I.J.M, Moll van Charante, E.P, den Elzen, W.P.J, Jansen, A.P.D, … Melis, R.J.F. (2015). Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS). Quality of Life Research, 24(5), 1281–1293. doi:10.1007/s11136-014-0841-2