The present study describes expectations of prognosis of recently diagnosed MS patients and their partners with a focus on the risk of wheelchair dependence. The three main questions in this thesis were: (1) How do recently diagnosed patients and their partners perceive the risk of wheelchair dependence? (2) How do perceptions of risk relate to psychological well-being? (3) What are the determinants of perception of prognostic risk? Before answering these key questions, the psychological burden of disease and the quality of life (QoL) of patients and partners in the early phase of MS are examined. It was demonstrated that the early period after diagnosis of MS puts a substantial emotional burden on patients and their partners. Patients and partners overestimated the short- and medium-term risks of wheelchair dependence, but underestimated the lifetime risk. Moreover, higher perceptions of the short- and medium risks were found among patients with higher symptom perception, and were associated with poorer psychological well-being. These findings are interpreted from a psychological and clinical perspective.

, , , ,
Meché, Prof. Dr. F.G.A. (promotor), Netherlands Organization for Scientific Research (NWO), Passchier, Prof. Dr. J. (promotor)
J. Passchier (Jan)
Erasmus University Rotterdam
hdl.handle.net/1765/1129
Erasmus MC: University Medical Center Rotterdam

Janssens, C. (2003, May 21). Perception of Prognostic Risk in Multiple Sclerosis.. Retrieved from http://hdl.handle.net/1765/1129


Additional Files
01.pdf Final Version , 2mb
13.pdf Final Version , 163kb
11.pdf Final Version , 133kb
10.pdf Final Version , 129kb
08.pdf Final Version , 129kb
07.pdf Final Version , 127kb
09.pdf Final Version , 126kb
12.pdf Final Version , 117kb
02.pdf Final Version , 103kb
04.pdf Final Version , 101kb
06.pdf Final Version , 99kb
05.pdf Final Version , 99kb
Janssens_front.jpg Cover Image , 75kb
03.pdf Final Version , 70kb
20.pdf Final Version , 56kb
21.pdf Final Version , 56kb
00.pdf Final Version , 55kb
30.pdf Final Version , 48kb
003.pdf Final Version , 41kb
001.pdf Final Version , 40kb